?? You've just been terminally diagnosed...

[Jennifer Stough]

I sympathize with her plight. It sounds like what happened with me. All the of my docs demanded that I stop working and file for disability. Same issues, memory is a big one., my legs and stamina the other. All non conducive to nursing especially Critical Care nursing where you are giving potentially lethal drugs. It was time for me to stop, but I went out kicking and screaming.

I don't know if your mom has issues with word finding but that's my biggest aggravation. I used to be so fluent, now I start and stop frequently because I just can't think of the words. It's very frustrating when I meet new people etc. If my posts seem abrupt at times, it's my train of thought, I try to get to the gist of the point I'm trying to make before I forget the entire thought.

Wow, now you guys know all my secrets.


What?! ... I'm msndrstood.
via Note II

That is exactly what she is going through. She gets so mad and says her brain is broken. She worked in cardiac critical care.

Jennifer Stough
Forums Moderator
Device: Droid DNA unlocked, s-off, rooted, running Hatka Supreme Sense 5.0, Android 4.1.2

 

[Aquila]

My adopted mother had liver cancer and was given the "6 months" speech. She was then one of the first people to receive a successful liver transplant in the US and lived for another 17 years until 1991 before developing cancer in other areas and passing away. During the time that I knew her (approximately 85 to 91), the only way I can describe her attitude is, "thrilled to be alive".

I handled it differently, when 12 years ago two of my vertebrae were cracked the probability was high of becoming paraplegic from the surgery and depending on the nature and severity of spinal damage, could easily be fatal. I was majorly depressed for a couple weeks, and then very, very angry about it. Regardless, in less than 3 months I was walking again and in around 6 months I was able to resume training. As far as I can tell, other than a total loss of feeling in around a 6" area of my back, there are no lasting adverse effects.

I think I'd think about it differently now, but who know?

 

[Fairclough]

I'll be honest, my family medical record on my mothers side is a bit hidden by my mother for unknown reasons - so usually my sister justs asks my Aunty (who I've never really gotten to see that often but seems to be the worlds nicest lady) for the details. The only really known one was my Aunt's battle with cancer in the early 2000s as a single mum, at the time I knew my cousins were staying and mine but weren't particularly sure (mum wouldn't tell us & for a long time we wouldn't see our aunty due to mum having an argument - mum was clearly in the wrong). She seemed to stay pretty strong, for a situation most of us would be worried about. Thankfully, the chemotherapy worked but she has came out (not sure whether it was to due with close proximity of the surgeries & Chemo etc) partly deaf, however that is better than other possible scenarios which everyone isn't as lucky. In recent years she's had a few scares with parts of it appearing on scans - but thankfully they were old treated ones which weren't fully removed for some reason or another. Mum claimed it was from working in a veterinary clinic without the right precautions on the x-ray machine but who knows it could be everything, now she doesn't work there as you now legally require paperwork to be an assistant which she doesn't have, shes now remarried and going well with her four children who are nearly grown up (youngest is 1 year younger then me so 17ish).

Personally, like statements above - if it was myself I wouldn't take it so well. I would probably be a mixed between, pissed off, angry and upset. I guess some are stronger than others.
Here is a picture of me and my favourite Aunty (and only but if i had more she still would be the favourite)

 

[grumpycompuprof]

My Mom received a diagnosis like that about 30 years ago, except the doctors didn't tell her, but my Dad. She had advanced colon cancer which had spread to the lungs already. Everyone except her, and her 13-year-old son (me) knew that she would not get to celebrate Christmas 1984. About six months before her passing in September, my Dad had a fatal car accident. Life have me a huge batch of lemons and made lemonade as best as I could. Right now I'm sitting on our bed and watch over our beautiful 17-months-old daughter while she is asleep, hoping and praying that she does not have to experience something like that. Yet, my wife has pseudo-tumor cerebri and in addition two brain tumors, one of which was already removed two years ago, but there is still that one...

Sent from my Nexus 10 using Tapatalk 4 Beta

 

[llamabreath]

My Mom received a diagnosis like that about 30 years ago, except the doctors didn't tell her, but my Dad. She had advanced colon cancer which had spread to the lungs already. Everyone except her, and her 13-year-old son (me) knew that she would not get to celebrate Christmas 1984. About six months before her passing in September, my Dad had a fatal car accident. Life have me a huge batch of lemons and made lemonade as best as I could. Right now I'm sitting on our bed and watch over our beautiful 17-months-old daughter while she is asleep, hoping and praying that she does not have to experience something like that. Yet, my wife has pseudo-tumor cerebri and in addition two brain tumors, one of which was already removed two years ago, but there is still that one...

Sent from my Nexus 10 using Tapatalk 4 Beta

I don't know what to say, words wouldn't help much, but thank you for sharing that.

??

 

[Jennifer Stough]

My Mom received a diagnosis like that about 30 years ago, except the doctors didn't tell her, but my Dad. She had advanced colon cancer which had spread to the lungs already. Everyone except her, and her 13-year-old son (me) knew that she would not get to celebrate Christmas 1984. About six months before her passing in September, my Dad had a fatal car accident. Life have me a huge batch of lemons and made lemonade as best as I could. Right now I'm sitting on our bed and watch over our beautiful 17-months-old daughter while she is asleep, hoping and praying that she does not have to experience something like that. Yet, my wife has pseudo-tumor cerebri and in addition two brain tumors, one of which was already removed two years ago, but there is still that one...

Sent from my Nexus 10 using Tapatalk 4 Beta

I hope the best for your family. I truly, sincerely do. You are a very strong person.

Jennifer Stough
Forums Moderator
Device: Droid DNA unlocked, s-off, rooted, running Hatka Supreme Sense 5.0, Android 4.1.2

 

[msndrstood]

That is exactly what she is going through. She gets so mad and says her brain is broken. She worked in cardiac critical care.

Jennifer Stough
Forums Moderator
Device: Droid DNA unlocked, s-off, rooted, running Hatka Supreme Sense 5.0, Android 4.1.2

Me too. And loved it.

What?! ... I'm msndrstood.
via Note II

 

[msndrstood]

My Mom received a diagnosis like that about 30 years ago, except the doctors didn't tell her, but my Dad. She had advanced colon cancer which had spread to the lungs already. Everyone except her, and her 13-year-old son (me) knew that she would not get to celebrate Christmas 1984. About six months before her passing in September, my Dad had a fatal car accident. Life have me a huge batch of lemons and made lemonade as best as I could. Right now I'm sitting on our bed and watch over our beautiful 17-months-old daughter while she is asleep, hoping and praying that she does not have to experience something like that. Yet, my wife has pseudo-tumor cerebri and in addition two brain tumors, one of which was already removed two years ago, but there is still that one...

Sent from my Nexus 10 using Tapatalk 4 Beta

It makes you stronger but damn, what a devastating series of events. Is amazing what you can deal with when you have to. Here"s to life treating you better in the future.

What?! ... I'm msndrstood.
via Note II

 

[klokateer123]

My youngest sister was diagnosed with leukemia when she was only 3 years old. She 16 now and she has been in remission since she was 5. Then about 4 years ago my mom was diagnosed with ovarian cancer and passed away almost 2 years ago. She stayed strong knowing she wasn't going to make it

On my timey wimey Sprint Optimus G

 

[Live2ride883]

I was given 6 weeks to live 16 years ago when diagnosed with advanced Legionnaires' disease.
It absolutely devastated my family, but I kept saying I don't feel like I'm about to die.

Score:
Doctor = 0
Jerry = 1

WTG Jerry.

With that out of the way, I'll share some information on my family history.

My dad passed from lung cancer in 97, he was a 2-3 pack a day man for many years. He told me one time that the reason he started smoking was that when he was in boot camp the people that smoked were given an extra 15 minute break. Loosing my dad was a defining moment in my life, he wasn't perfect, he made a lot of mistakes. But he was always there for me and my brother and sister.

My 15 year old son Jakob has Neurofibromatosis type 1, Neurofibromatosis - Wikipedia, the free encyclopedia.

He was diagnosed at an early age (before internet in my area). The first thing I did was go to the local library and read medical books on it. I walked away from those books wondering what kind of life he would have. Now at almost 16, he has had several tumors removed from his face, and upper torso. At any given time he has approximately 300-500 brown spots referred to as("cafe-au-lait" spots). Kids at school used to bully him constantly about them, same when he would go swimming at the beach/city pool. Thankfully this has just about stopped. In Oct of 2011 he had spinal fusion surgery due to childhood scoliosis which is a side effect of his NF. We also have to be very watchful for signs of childhood leukemia, and epilepsy as well.

As for myself, I recently have had to under go a pet scan to test for non-hodgkins lymphoma, I also recently had an upper GI scope where 12 polyps were found in my stomach and were biopsied to see if they are cancerous. The Dr. said that my throat looked like something tried to claw its way out of my stomach. Which after dipping Copenhagen for 35 years before I managed to quit wouldn't surprise me.

 

[llamabreath]

Pet scans are the worst.

??

 

[msndrstood]

Msunderstood, It hurts to read that.

??

I'm sorry. Didn't mean to get so detailed. I left a lot of soul ripping stuff out. It was the thing I dreaded most all of my life. My dad and I were the black sheep of the family, I guess that's why it still gets to me all these years later. Some things you just never get over.

What?! ... I'm msndrstood.
via Note II

 

[msndrstood]

I'll be honest, my family medical record on my mothers side is a bit hidden by my mother for unknown reasons - so usually my sister justs asks my Aunty (who I've never really gotten to see that often but seems to be the worlds nicest lady) for the details. The only really known one was my Aunt's battle with cancer in the early 2000s as a single mum, at the time I knew my cousins were staying and mine but weren't particularly sure (mum wouldn't tell us & for a long time we wouldn't see our aunty due to mum having an argument - mum was clearly in the wrong). She seemed to stay pretty strong, for a situation most of us would be worried about. Thankfully, the chemotherapy worked but she has came out (not sure whether it was to due with close proximity of the surgeries & Chemo etc) partly deaf, however that is better than other possible scenarios which everyone isn't as lucky. In recent years she's had a few scares with parts of it appearing on scans - but thankfully they were old treated ones which weren't fully removed for some reason or another. Mum claimed it was from working in a veterinary clinic without the right precautions on the x-ray machine but who knows it could be everything, now she doesn't work there as you now legally require paperwork to be an assistant which she doesn't have, shes now remarried and going well with her four children who are nearly grown up (youngest is 1 year younger then me so 17ish).

Personally, like statements above - if it was myself I wouldn't take it so well. I would probably be a mixed between, pissed off, angry and upset. I guess some are stronger than others.
Here is a picture of me and my favourite Aunty (and only but if i had more she still would be the favourite)

At the risk of sounding like an old fart... you look so young!

What?! ... I'm msndrstood.
via Note II

 

[msndrstood]

WTG Jerry.

With that out of the way, I'll share some information on my family history.

My dad passed from lung cancer in 97, he was a 2-3 pack a day man for many years. He told me one time that the reason he started smoking was that when he was in boot camp the people that smoked were given an extra 15 minute break. Loosing my dad was a defining moment in my life, he wasn't perfect, he made a lot of mistakes. But he was always there for me and my brother and sister.

My 15 year old son Jakob has Neurofibromatosis type 1, Neurofibromatosis - Wikipedia, the free encyclopedia.

He was diagnosed at an early age (before internet in my area). The first thing I did was go to the local library and read medical books on it. I walked away from those books wondering what kind of life he would have. Now at almost 16, he has had several tumors removed from his face, and upper torso. At any given time he has approximately 300-500 brown spots referred to as("cafe-au-lait" spots). Kids at school used to bully him constantly about them, same when he would go swimming at the beach/city pool. Thankfully this has just about stopped. In Oct of 2011 he had spinal fusion surgery due to childhood scoliosis which is a side effect of his NF. We also have to be very watchful for signs of childhood leukemia, and epilepsy as well.

As for myself, I recently have had to under go a pet scan to test for non-hodgkins lymphoma, I also recently had an upper GI scope where 12 polyps were found in my stomach and were biopsied to see if they are cancerous. The Dr. said that my throat looked like something tried to claw its way out of my stomach. Which after dipping Copenhagen for 35 years before I managed to quit wouldn't surprise me.

I haven't had a PET scan but have had my share of MRI's of the head and back. I love tech but I could do without those behemoth machines and their bone rattling clunking noise. I'm sure a PET scan is just as bad. Glad you are doing well now.

What?! ... I'm msndrstood.
via Note II

 

[llamabreath]

I'm sorry. Didn't mean to get so detailed. I left a lot of soul ripping stuff out. It was the thing I dreaded most all of my life. My dad and I were the black sheep of the family, I guess that's why it still gets to me all these years later. Some things you just never get over.

What?! ... I'm msndrstood.
via Note II

You don't have to apologize for giving the details... It probably helps to write about it, and I'm encouraging this here for everyone's benefit.

??

 

[Jennifer Stough]

At the risk of sounding like an old fart... you look so young!

What?! ... I'm msndrstood.
via Note II

I think he's 18 lolol

Jennifer Stough
Forums Moderator
Device: Droid DNA unlocked, s-off, rooted, running Hatka Supreme Sense 5.0, Android 4.1.2

 

[msndrstood]

I think he's 18 lolol

Jennifer Stough
Forums Moderator
Device: Droid DNA unlocked, s-off, rooted, running Hatka Supreme Sense 5.0, Android 4.1.2

Just a baby and only 4 years older than my oldest grandchild! Although, to be fair every one seems young to me, Lol.

Someone needs to show the time machine down, please.

What?! ... I'm msndrstood.
via Note II

 

[msndrstood]

A quick off topic.... And why are all my smilies just smiles? No sad faces, no eeks, just smiles. Anyone else?

What?! ... I'm msndrstood.
via Note II

 

[Fairclough]

There are a few sad faces but more smilies - maybe phil wanted to promote a positive environment? God knows. Yeah I am the baby of my family, of my work (there 1 or 2 younger but they don't know that - the office girls though i was low twenties -_-) and now the forums ha. Just legal, well over here I am not in the US.

He was diagnosed at an early age (before internet in my area). The first thing I did was go to the local library and read medical books on it. I walked away from those books wondering what kind of life he would have. Now at almost 16, he has had several tumors removed from his face, and upper torso. At any given time he has approximately 300-500 brown spots referred to as("cafe-au-lait" spots). Kids at school used to bully him constantly about them, same when he would go swimming at the beach/city pool. Thankfully this has just about stopped. In Oct of 2011 he had spinal fusion surgery due to childhood scoliosis which is a side effect of his NF. We also have to be very watchful for signs of childhood leukemia, and epilepsy as well.

Live2Ride, sorry to hear about your conditions and your son. I will not lye there are a low of horrible children in the world who would pick on someone for such issues which just starts a spiral effect. I am glad I went someone were people made it known it wasn't on and the only people who were on the receiving end of jokes were someone who could take it e.g The first sports team Captain and it would only be a practical e.g move their locker to the other side of the school. who in US terms would be I guess the First String Quarterback. In the lower years I guess its though but I believe and I hope its the same case with your son that students mature and think about their words and actions a bit more. Hopefully everything works out with your family.

 

[grumpycompuprof]

Thanks for all your words of encouragement. It is interesting, because my wife sometimes says, especially when she hears excuses of robbers or murderers, "why didn't you turn out the way they did. You sure have every reason to." Is simple - choices. Lemons - lemonade.

Sent from my Nexus 10 using Tapatalk 4 Beta